Happy birthday!

It was my sweet baby boy's (who is more boy than baby now) birthday and he had a jam-packed day. First, preschool, where they gave him a crown and had muffins (mommy-baked, peach and blueberry) and sang "Happy Birthday." His teachers gave him the run of the place for the day, so he had a good time.

Then lunch at Chick-fil-a with Mommy, always a hit, then a nap, then speech therapy. His teacher brought presents for both him and Mommy (nice!). Daddy came home early and grilled him his own pizza and then it was cake and presents and bed.

For three, a pretty full day. The party will come later when his friends are back in town and Grandma and Grandpa are here (and Mommy is not double-booked for meetings).

But he's so amazingly cute and sweet. Liz and Bill sent a box of stuff (a wonderful surprise) and A tore through it like mad as a before-dinner treat. But he's so amazingly smart. He opened a book he's never seen and said, "Oh, it's Dr. Seuss!"

We just got back from Balboa Park. I took him to the puppet show (Pirate Paul) to get a birthday surprise: a crown and a card and a little frog prince finger puppet. Then an auditorium of people sing "Happy Birthday" to him. They called his name and he just ran down (we were sitting in the very back row) to the front without one look back for Mommy. He's getting so grown-up and worldly.

Hormones

Yup, I've got 'em. It's official.

Last week, I woke up at 4AM and couldn't get back to sleep. So I did some ironing (it's been hot and 4AM is the coolest time of the day) until A got up and then I went into the kitchen and looked at the dishwasher and the counter full of dishes and had a nutty. To his credit, when C heard me slamming doors and dishes and mumbling under my breath to myself ("Sure, I'll unload this thing again since I'm the one who loaded it and ran it and unloaded it and ran it the last five times,"), he sent me out of the kitchen and finished doing it himself and didn't say a word to me about it.

In my own defense, there's something about unloading the dishwasher when you've loaded the dishwasher that makes me feel like a complete drudge even when I'm not pregnant.

Then the YouTube crying attacks started. I teared up to the birth slideshow on one of the blogs I read, because the husband and wife look so in love and newborns are so tiny. People sent me the YouTube video of the bridal party dancing down the aisle and I teared up every time the bride came down the aisle.

I've got no reasonable defense for that.

Last night, I had to print volunteer recognition certificates up for the writing organization I am the Volunteer Coordinator for. All I had was a .PDF file, so I had to run them through twice, once through Adobe for the certificate and once through Word for the names. The paper crumpled or curled or misfeed so it was a complete failure. And that's when C came in and took over for me and got things to a point where I could manage to go to Staples and finish it today.

And my darling husband hasn't once said, "Dear, you seem a bit irrational and crazed," because he's very wise and he knows there's nothing he can do. But, yes, dear, I am aware that I am irrational and crazed and thank you for taking up the slack and stopping me from being quite as destructive as I could be.

I have no earthly idea how I'll make it through a "thank you, wonderful volunteers," speech today without blubbering.

Audiology success

Today was A's third hearing test. This time, he's old enough to try a more interactive test, so he was given small tasks to do every time he heard a beep. Being the old hand at testing that he is, he responded only to the first beep of each frequency. If they tried to retest him, he stared at them like, "Oh, please, can't you leave me in peace?"

The good news is, the test went great. He had some test fatigue that gave him some funky numbers on his right ear, but even if the funky numbers are right, they aren't in a range that would impact his speech development abilities, which was the whole impetus for the testing in the first place.

So it looks like he's got no hearing losses. His eardrums behaved beautifully. The hearing receptor cells in his ears are responding as expected. He's just bored the third time through his hearing test.

Due to funky numbers, we have to go back for a retest in one year, which I am fine and dandy with. And the audiologist was nice enough to give me a copy of the audiogram, which is what the school district wants to show he's been tested and that's not an issue they have to start testing him for on his speech.

Great news. And C and I did the two-car tango today to take car of a punctured tire and and oil change, so the car's in good shape, A's ears are in good shape, and it's almost Friday.

Rock star mommy

Oh no, audiology, I will not be your humble supplicant again.

I got a call from the audiology department. As you'll recall, this is my third time trying to schedule an appointment and I first requested a hearing test August 1, 2008.

"He's cleared from his ENT and his ears look great, so I'd like your next available appointment."

"That would be September 11 at 10AM."

Excuse me? So I cajole and wheedle and reluctantly type it into my calendar, and then I get my inner rock star on.

"May I speak to your supervisor? I'm very disappointed; his ears are clear; we've been through this twice now and I don't want to wait and see if he's sick in September or not so we can go through all this again."

Um, she doesn't know why I'd want to speak to her supervisor. After all, her supervisor isn't here.

"How many supervisors do you have?"

"Well...which one did you want to speak to?"

"The one who can get me an earlier audiology appointment."

"That would be audiology. Hold on."

I hold.

"This is Elisha."

I explain, nicely, that I'm trying to get an audiology retest for my son. Both times the audiologists saw something in his ears; after the second time, they recommended going to the ENT and calling to say, he's clear, he's well, do it soon. And I did that and they offered me September, and while I understand how swamped the schedule is, I don't want to go through this again if he's sick in September when I know he's well now. It seems that by going by the system and always having our next appointment six to eight weeks out, we are setting ourselves up for failure.

Elisha says she'll look, and while she's looking I reiterate how busy I know they are and if this wasn't the third re-test, I wouldn't be talking to her.

"How's Thursday at 9?"

"Thursday, like two days from now Thursday?"

Yes. We'll take it. For bonus rock star glamour, I call his preschool teacher and get him rescheduled for tomorrow instead of his usual Thursday. And now I have an extra Wednesday morning free this week!

All clear, preschool registration

So it's been a week. C had comp time for his horrible work schedule of a while ago, and so we had a go about our normal crazy routine week. A couple highlights for you:

A had two follow-up doctor visits so far and he's doing great. One with the asthma specialist at our pediatrician's, who says he's sounding great and is taking him off most of his drugs. One with the ENT (finally) to check his ears to see if they are affecting his hearing tests. His ears are crystal-clear gorgeous and he's fine and ready to go to town on the hearing test, so cross your fingers that we can get that scheduled soon.

While C braved the pediatrician's, I went to public preschool registration, which was a little three-and-a-half hour slice of hell. First of all, when I entered the room (about the size of my grandparents' barn, but louder), there was a violin class for eight-year-olds going on at the front of the room. Thirty little children sawing away on their violins weren't even the worst of the noise. There were randomly arranged tables and hundreds of metal folding chairs that appeared to have been dropped from the ceiling and left where they fell, because there was no order to this room.

The room was filled with screaming, largely unattended children, mostly under six. It was stuffy and hot and the parents were obviously too frustrated with the processes of bureaucracy to care about whether or not their little ones were behaving. There were two sisters who took on the alpha mean girl roles and took toys away from other children and hit them when the other kids complained. They were nasty enough that other parents were just saying, "Stay away from those two," instead of slapping the girls around.

I was number 108. I was second to last.

The system works like this:

1. Go to entry table. Show all documents (birth certificate, immunization record, proof of address, proof of income). They make copies and assign you a number.
2. Wait to be called. For three hours. In kiddie hell.
   
3. Go to the document confirmation table. Woman confirms that you have all the documents and that you filled out forms correctly. She gives you a folder for all your copies. Go back and wait some more, maybe twenty minutes.
4. Wonder if the small children coughing near you have TB. Take your hand sanitizer and wipe out your lungs.
   
5. Go to the proof of income table. Woman does math with paystub to determine whether your child qualifies for Head Start (low income and disadvantaged in some way), preschool (low income but not as low or disadvantaged as Head Start), or School Readiness (everyone else). Smother urge to ask woman if you really needed to go through this charade since you darn well know you are not low-income.
6. Wait again. Cheer up when you talk to someone who made it to the inauguration and how amazing it was.
7. Go to the nurse table. The nurse sees the asthma box checked, hears the word, "hospitalization," and produces four more forms to be filled out by you and the child's doctor. She also tags your folder with a sticky note that says ASTHMA so she'll know who you are later.
8. You're almost the last one, so there's no waiting for the last table, the school choice table. You ask for the school near you that has public preschool for kids regardless of income and a great speech therapy program. She tells you it's almost full. What are your second choices? Um... She makes some suggestions. You accept them, because you have no clue. He's only three. You're beginning to feel like he's not going to get in anyway.

Doctor's followup

Of course, they recommend you see your pediatrician within a couple days of being in the hospital. Of course, our pediatrician was all booked up, so I asked for the asthma specialist instead. I had to get all Bryn Mawr on them when I made the appointment. ("I'm sorry, maybe I didn't make myself clear. My 3-year-old just got out of the ICU and needs to see his pediatrician for follow-up care within one to two days. Would you like to check the schedules again and see where you can get us in?")

So today we went and saw the asthma specialist, and learned the following things:

1. One of our practice's doctors was physically in the same hospital we were all weekend and nobody called him to let him know we were there, which they're supposed to. This makes the doctors in our practice a little pissed.
2. The chest X-ray A had in the ER did show some interesting congestion and was not as clear as I was led to believe.

The doctor wasn't thrilled with the way A sounded, upped his meds again, and wants to see him on Tuesday to double-check the congestion he's hearing.

So that's where we are. A is still much more active and happier than he's been, but he's not 100% yet. But he can do normal activity levels, with lots of drugs.

We got word today that he's been accepted into the preschool he's currently going to once his free services expire, so hey, that's one less thing to worry about.

Hospital alphabet soup: ER and PICU

Happy Fourth. We all had an exciting one here. Very early on the 4th, like 2:30 a.m., C woke me up and said, "A's retracting. I just gave him albuterol and it didn't seem to work. I think we need to go to the hospital."

Now sometimes it takes me forever to wake up, but that one got me instantly awake. I looked in at A and said, "Yeah, we're going to the ER." C had been up since midnight with A (letting the pregnant lady sleep, thank you). When A can't breathe, he can't sleep. But A was pretty pale and lethargic and uncommunicative.

Off we go. We throw clothes for A and some other random supplies into his preschool backpack: a book for me, extra underpants, his immunization card. We make it to the hospital around 3 and park at the curb in front of the emergency room. We go to the front desk of a huge waiting room and explain what's happening to A. The nurse takes a look at A and immediately takes him into the back to put him on oxygen. His first oxygen saturation level was 82-85%. Normal is in the 90s, the high 90s for being awake. At 75%, you pass out.

We were in the ER for about three hours while they tried a couple different drugs on him: albuterol, xophenex, magnesium sulfide. They put an IV in to get stuff to him quicker than the nebulizer. They took blood tests. Nothing was making him better, so then they admitted him to the Pediatric Intensive Care Unit (PICU) where he could get more treatments and continuous monitoring.

So we spent Saturday in the PICU while they worked on A. He slept for about an hour during the day, but spent most of his time watching television (what a novelty!). They changed up his drug cocktails and put him on heliox, which is a helium and oxygen mixture that's not as hard for someone to breathe as straight oxygen. By the end of the day he was stable but not great. He was so hungry but they weren't letting him eat until they were happy with his oxygen levels and drug cocktails, so he didn't get to eat anything until the afternoon. First some juice, then a popscile, then it was the clears for dinner: broth, Jello, Italian ice, juice.

C and I slept in the PICU with him, C on the pull-out chair and me on the window seat that was just shy of five feet long. None of us slept particularly well. Both C and I were up with A at different times. A was hooked up to six different sensors, plus the IV, and all that tubing is hard on a wiggle worm who moves around a lot in his sleep. The nurse eventually knotted it all together into a kind of corset so he wasn't getting tangled every five minutes.

Sunday he looked a lot better. He was alert and had opinions about what movie he should watch and how he didn't want the sensors on him. He ate a bowl of cereal. He was let off the sensors to go to the potty and that became his way to get up out of that bed. [A side note: the kid is potty trained. He wouldn't go in his diaper, even when we told him there was no way to get him off all the monitors and IVs and he should go in the diaper, so he held it until we found a bedpan and took the diaper off. He is so potty trained.]

Sunday night they debated releasing us or sending us to the medical/surgery floor for observation, deciding (with our supporting opinion) that he should probably spend another night just to make sure the maintenance treatments were working. So down we went to another floor, another room. When we got there, we were in one of the few double rooms on the floor with a family loudly watching soccer with two obnoxious wounded children, but they checked out not long after we got there and we had the room to ourselves for the rest of the time.

Sunday night, I slept in the folding chair and C slept on the floor. We were all a bit slap-happy at that point. A was disconnected from all the monitors and his IV, so he slept much better. The nurses checked A's vitals every four hours; the respiratory therapists administered treatments every four, and none of them really woke him up from sleeping, so that was fabulous and appreciated.

Monday, A was much, much better. He spent all the time he could in the playroom and took a nap around his normal naptime for a really long time. The nurses decided around noon that we would go home; we just needed a lot of paperwork and approvals because the PICU was still following A's case. But they let us go around 5-5:30, loaded A up with drugs and us up with filled prescriptions, and sent us home. And our friends and family from out of town delayed our dinner reservations so we could go home, hand off A to our darling neighbor, and go out for a fabulous dinner.

I'm so tired. A's pretty tired. C is tired. We've got new drugs to hopefully keep us out of the hospital in the future; we've got appointments with all sorts of doctors to keep us on track and help us figure this out. But as I write this, A is laughing in the tub and having fun with Daddy so things are much better here now.